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Kyla’s Journey with Eosinophilic Esophagitis (EoE): From Diagnosis to Dietary Therapy and Beyond

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Living with a rare condition like eosinophilic esophagitis, or EoE, isn’t easy – especially for kids. When Kyla didn’t enjoy eating, had trouble sleeping and wasn’t growing, her mom, Amanda, knew something wasn’t right.

Even after they received an EoE diagnosis, Kyla’s parents were often frustrated by lack of answers from various pediatricians, gastroenterologists and allergists. But EoE and other eosinophilic gastrointestinal diseases (EGIDs) are so uncommon that not every team is equipped to treat them, particularly in growing children. Ultimately, the family sought an opinion from the experts at Children’s Hospital Colorado’s Digestive Health Institute. Soon, with help from a multidisciplinary team of pediatric gastroenterologists, allergists, registered dietitians, feeding specialists, psychologists and child life specialists, Kyla found the care she needed. Today, with her entire medical team collaborating on a individualized plan for EoE treatment, an EoE diet and more, Kyla is thriving.

Watch Kyla and her family as they share how they found hope and resources for living with EoE. Then, learn more about our highly specialized pediatric Gastrointestinal Eosinophilic Diseases Program: https://www.childrenscolorado.org/doctors-and-departments/departments/digestive-health/programs/eosinophilic-gastrointestinal-diseases/

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